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Financial Challenges of Raising a Child with Special Needs

Raising a child with special needs can present significant financial challenges for families. These challenges stem from the costs of medical care, therapy, specialized education, and additional support services. There are a number of available resources that can help alleviate some of the financial strain and ensure that children with disabilities receive the support they need. While many of the programs will be government related, there are also a number of nonprofit resources that can help. These services range from Social Security programs designed to provide financial assistance, health insurance programs, food assistance and more.

How SSI Can Help

Supplemental Security Income (SSI) is a federal program designed to provide financial assistance to individuals with disabilities who have limited income and resources. For children with special needs, SSI can offer crucial support to cover essential expenses. The program is based on financial need rather than the severity of the disability, making it an important resource for many families.

To qualify for SSI, a child must meet specific disability criteria and have a family income and resources that fall below certain limits. SSI benefits can help cover costs such as medical expenses, therapy, and everyday living needs, providing some financial relief to families managing the additional costs associated with raising a child with special needs.

What Does the SSA Consider to Be a Child for SSI Benefits?

For the purposes of Supplemental Security Income (SSI) benefits, the Social Security Administration (SSA) considers a child to be an individual who meets specific age, disability, and financial criteria. Here’s a detailed explanation:

  • Under 18: A child is typically defined as someone under the age of 18.
  • Under 22: If the individual is a student regularly attending school, they may still qualify as a child under SSI rules until they turn 22.
  • Physical or Mental Condition: The child must have a medically determinable physical or mental condition (or a combination of conditions) that results in marked and severe functional limitations.
  • Duration: The condition must be expected to last at least 12 months or result in death.
  • Income and Resources: The child's household must meet the financial limits set by the SSA. This includes the income and resources of the parents or guardians. The SSI program is needs-based, so the family’s financial situation plays a crucial role in determining eligibility.

The SSA conducts a thorough evaluation to determine if these criteria are met:

  • Medical Evidence: Detailed medical records and reports from healthcare providers.
  • Functional Assessments: Evaluations of how the condition affects the child’s ability to perform daily activities.
  • Household Financial Review: Assessment of the family's income and resources to ensure they fall within the SSI limits.

Other Government Programs for Children with Special Needs

There are a multitude of other government programs beyond SSI that can provide financial aid and support for families with children who have disabilities. These programs offer various forms of assistance to help cover different aspects of care and support.

Medicaid

Medicaid is a state and federal program that provides health coverage to individuals with low income. For children with special needs, Medicaid can be an essential resource, covering a wide range of medical services including hospital care, doctor visits, prescription medications, and sometimes even long-term care. Eligibility requirements vary by state, but Medicaid generally offers comprehensive coverage for those who qualify.

CHIP

The Children’s Health Insurance Program (CHIP) offers health coverage to children in families with incomes too high to qualify for Medicaid but too low to afford private coverage. CHIP can help cover medical services for children with special needs, including routine check-ups, vaccinations, and emergency care. Each state administers its own CHIP program, so benefits and eligibility can vary.

TANF

Temporary Assistance for Needy Families (TANF) provides financial assistance to low-income families, including those with children who have disabilities. TANF benefits can be used to cover various family expenses, including those related to a child's special needs. The program also offers support services such as job training and child care assistance.

SNAP

The Supplemental Nutrition Assistance Program (SNAP), formerly known as food stamps, helps low-income families purchase nutritious food. For families with children with special needs, SNAP can help alleviate some of the financial burdens associated with feeding a growing child. The program ensures that families can provide adequate nutrition without having to stretch their budgets too thin.

deaf special needs child signing with adult

Private Grants and Organizations

In addition to government programs, several private grants and organizations offer financial assistance and support for families with children who have special needs. These organizations provide grants for medical expenses, therapy, educational needs, and other essential services. Some well-known organizations include:

The United Healthcare Children's Foundation: Offers grants to help cover medical expenses not covered by insurance.

The Autism Speaks Family Services: Provides grants for therapy and support services for families affected by autism.

The National Organization for Rare Disorders: Offers financial assistance and resources for families dealing with rare conditions.

These grants and organizations can help bridge the gap between available government aid and the full range of expenses that families may encounter.

Wettermark Keith: Experienced Disability Appeal Attorneys for Child SSI Claims

Our team of experienced attorneys specializes in assisting families with denied claims, providing guidance on accessing benefits, understanding your rights, and finding additional resources. Don’t hesitate to reach out for expert support tailored to your family’s needs. We are committed to helping you appeal denials and secure the benefits your child deserves. 

At Wettermark Keith, we have an excellent reputation as one of the most accomplished personal injury firms in the country. We offer a diverse range of practice areas, including personal injury cases, auto wrecks, trucking wrecks, nursing home abuse, medical malpractice, on-the-job injuries, social security, and VA disability, to name just a few. At Wettermark Keith, we believe in taking cases personally. Our purpose is to practice with care and compassion - to tell our clients' stories and make their voices heard. We achieve this by building strong relationships based on constant communication and an unwavering dedication to truth and trust.

Frequently Asked Questions

SSI (Supplemental Security Income) provides financial assistance based on need for individuals with disabilities, regardless of their work history. SSDI (Social Security Disability Insurance) is for individuals who have worked and paid into Social Security but are now unable to work due to a disability. SSI is typically used for children with disabilities, while SSDI is more common for adults.

To apply for Supplemental Security Income (SSI) for your child, you can start the process through the following methods:

  • Online: Begin the application on the SSA's Child Disability Report page.
  • Phone: Schedule an appointment by calling the SSA at 1-800-772-1213 (TTY 1-800-325-0778).
  • In-Person: Visit your nearest SSA office. Use the SSA office locator to find the closest location.

Yes, a child with special needs can be denied Supplemental Security Income (SSI) benefits. There are several reasons why an application for SSI may be denied. Medical ineligibility is one common reason; the Social Security Administration (SSA) requires that a child's disability results in "marked and severe functional limitations" and is expected to last at least 12 months or result in death. If the medical evidence provided does not meet these criteria, the application may be denied. 

Additionally, SSI is a needs-based program with strict limits on the income and resources of the household. If the parents' income or assets exceed these limits, the child may be ineligible for SSI benefits. Incomplete or insufficient documentation is another reason for denial, as it is crucial to provide comprehensive and accurate information about the child's condition and the family's financial situation.

Furthermore, if it is determined that the child is not following a prescribed treatment plan without a valid reason, the claim may be denied due to non-compliance. Finally, conditions expected to improve within 12 months are generally not considered disabling under SSI criteria.

The approval process for SSI benefits can vary widely but typically takes several months. The time frame depends on the complexity of the case, the volume of applications, and the completeness of the information provided. It’s important to ensure all required documentation is submitted to avoid delays.

If your child's condition improves, the Social Security Administration may review their eligibility. If they no longer meet the disability criteria, SSI benefits may be discontinued. However, families should be aware that periodic reviews are part of the SSI process, and a change in condition does not always result in an immediate loss of benefits.

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